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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.

Forum

Blood pressure and IV/IG

Started by Deborah Yount in General. Last reply by Pastor Paul 5 hours ago. 3 Replies

I have been told by my neurologist that my GBS is returning so he ordered an IV/IG again but the only problem is they can't get my blood pressure high enough to give it to me. Has anybody else encountered this and what did you do? Iit's now on the…Continue

Depression and anxiety with GBS

Started by Mmeadows in General. Last reply by Tarhealing 21 hours ago. 1 Reply

Has anyone else experienced depression and anxiety along with your GBS? I am having a difficult recovery and may lose my job. I am getting more and more depressed the longer this goes on.

Alpha Lipoic Acid / R - Lipoic Acid

Started by Nostromo in Complementary Therapies. Last reply by Tarhealing yesterday. 14 Replies

Has anyone had much experience with Alpha Lipoic Acid or R-Lipoic Acid?  It looks like it might help with general neuropathy.  The R-form is supposed to be much more bioavailable and effective so that's what I picked up.  I've read some stories…Continue

Any Experiences with Night-time Tachycardia?

Started by Tarhealing in General. Last reply by Tarhealing yesterday. 3 Replies

I've been recovering from a re-flare of symptoms following a sinus infection. My other symptoms like muscle weakness, facial weakness, leg and arm numbness have been resolving over the last two months. This time however, I've had more twitching in…Continue

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Latest Activity

Pastor Paul replied to Deborah Yount's discussion Blood pressure and IV/IG
"I remember my blood pressure fluxurated but mostly spiked up and had bad headaches when it went…"
5 hours ago

Moderator
mdolich left a comment for IBrando
"Welcome to our family IBrando. I'm sure you'll find a lot of great information here. We…"
21 hours ago

Moderator
mdolich left a comment for FancyNancy
"Welcome to our family Nancy. I'm sure you'll find a lot of great information here. We…"
21 hours ago
Profile IconFancyNancy and IBrando joined Guillain-Barre Support - Online Support Group
21 hours ago
Tarhealing replied to Mmeadows's discussion Depression and anxiety with GBS
"You are not alone. I have definitely experienced this along the way. It really complicates things.…"
21 hours ago
Mmeadows posted a discussion

Depression and anxiety with GBS

Has anyone else experienced depression and anxiety along with your GBS? I am having a difficult…See More
yesterday
Deborah Yount replied to Deborah Yount's discussion Blood pressure and IV/IG
"88/64 was one of the readings (I think) and if I'm not mistaken in which I could be I think…"
yesterday
Tarhealing replied to Nostromo's discussion Alpha Lipoic Acid / R - Lipoic Acid
"Hi Nostomo, I'm not sure what kicked off the heart issues but found out I'm having SVTs…"
yesterday
 
 
 

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Blog Posts

Relapse

Posted by Deborah Yount on April 14, 2015 at 5:27am 1 Comment

I just received the news that I have had a relapse. I'm trying to find out if anyone else has and what it was like. Also I was just looking for friends who understood GBS to be friends with and be able to talk to. Feeling really tired right now so… Continue

Thanks again everyone for letting me bend your ear (or rather texting). I went back today to see my neurologist and he did a nerve conduction test and came to the conclusion that the GBS is creeping …

Posted by Deborah Yount on April 11, 2015 at 8:04am 0 Comments

Thanks again everyone for letting me bend your ear (or rather texting). I went back today to see my neurologist and he did a nerve conduction test and came to the conclusion that the GBS is creeping back up my legs again. He is going to treat me… Continue

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