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About

 

What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.

Forum

i cant taste

Started by mallory in General. Last reply by Synergy463 1 hour ago. 4 Replies

Hi Everyone, I was wondering if anyone has their mouth numb. Its very hard for me to taste and I think I can get it back by going to an acupuncturist but ins. does not cover it so that will have to wait. Does anyone have any ideas? Also, I have the…Continue

Tags: talking, GBS, miller-fisher, listening, doctors

700 Club TV Show appearance

Started by babsmiracle in General 2 hours ago. 0 Replies

http://youtu.be/XecIcvZGUSsIf you missed my appearance on the 700 Club TV Show this past Monday talking about my illness with GBS, it is now available on Youtube (video above) and at the CBN.org site as well.Continue

New to the group - Questions

Started by chico in General. Last reply by LanceB 3 hours ago. 12 Replies

Its been 38 days since I was released from the Hospital after 5 days of IVIG. My symptoms at the worst was tingling and numb hands and feet with profound weakness in both legs. I have been walking like a duck for weeks. I have not measured the…Continue

new to group but not GBS

Started by mistylynn81 in General 16 hours ago. 0 Replies

I started falling in september 2012 then paralysis oct 3 2012. I spent 14 months in a nursing home (4.5 learning to walk again) the rest building strength and still learning to walk. Im doing really good now im not even using a walker now as of 6…Continue

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Latest Activity

Synergy463 replied to mallory's discussion i cant taste
"Hi Mallory!   I was trached for a long time when I had GBS (early 80’s). My taste…"
1 hour ago
Gbsguy replied to mallory's discussion i cant taste
"Hi, I'd love to have someone to talk to. I don't see a problem giving you my e-mail."
1 hour ago
Jackie left a comment for chico
"Warm welcome to the group, I hope you find support and comfort here!   Jackie  "
1 hour ago
Jackie left a comment for mallory
"Warm welcome to the group, I hope you find support and comfort here! Jackie  "
1 hour ago
Jackie left a comment for jclev3021
"Warm welcome to the group, I hope you find support and comfort here! Jackie  "
1 hour ago
Jackie left a comment for Wenders71
"Warm welcome to the group, I hope you find support and comfort here!   Jackie  "
2 hours ago
Rosemarie kaupp replied to mallory's discussion i cant taste
"God bless you Mallory for your courage & determination. I have very mild GBS, but I had…"
2 hours ago
babsmiracle posted a discussion
2 hours ago

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Blog Posts

Never give up.

Posted by Armando Abrero on April 20, 2014 at 4:32pm 0 Comments

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…

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Community Newsletter

Posted by Ben Munoz on March 3, 2014 at 9:00pm 0 Comments

Dear GBS Family and Friends,

We're very happy to announce that we were just approved as an official nonprofit by the IRS!!
This means that we are eligible for corporate and…
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