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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Hi - we are new to this support group

Started by RollerCoasterMom in General. Last reply by RAC_Cherry 23 minutes ago. 7 Replies

My son (3) was diagnosed with Guillain-Barre a little over three weeks ago.  It has been a crazy time and we are searching for more information.  He had 4 IVIG treatments, spinal tap and nerve conduction study.  Not sure where to look for more…Continue

GBS and Shaky Hands

Started by Nutty in General. Last reply by Spencer 11 hours ago. 5 Replies

HiI am a new member and was delighted to received such a warm welcome - Thank you! I am GBS survivor and almost a year down the line I am blessed to be on the road to recovery. I still have side effects, one of which is "shaky hands" do any other…Continue

can she get better ?

Started by brooke in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by deltarat 12 hours ago. 8 Replies

my mom was just diagnosed with acute Gillian barre. I've been reading so much but nothing has answered my question. is she automatically doomed down the road ? will she eventually end up in a wheelchair. she's also diabetic and has arthritis,…Continue

Recovery for Guillian Barre' Syndrome

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lisa Cremeans yesterday. 12 Replies

Hi, everyone! I am here on behalf of my brother in law Jim, who recently developed a fast onset of GBS. This is day 29, he is still in a ICU type unit with vent and on second go around of IVIG! He is paralyzed from the neck down. We are wondering…Continue

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Latest Activity

RAC_Cherry replied to RollerCoasterMom's discussion Hi - we are new to this support group
"I am so sorry that you and your child are going through the ups and downs of GBS. there is a…"
23 minutes ago
Nebretta replied to RollerCoasterMom's discussion Hi - we are new to this support group
"Your son has YOUTH on his side.  Sounds like he is under good care. Nebretta"
25 minutes ago
Toni replied to RollerCoasterMom's discussion Hi - we are new to this support group
"I am so very sorry to hear of your little boy, I was diagnosed last September, I am almost entirely…"
2 hours ago
deltarat replied to RollerCoasterMom's discussion Hi - we are new to this support group
"So sorry to hear your 3 yr old son has GBS? It was scary enough for me as snow adult. I was 71 when…"
3 hours ago
LanceB replied to RollerCoasterMom's discussion Hi - we are new to this support group
"So sorry to hear this. It's hard to take as an adult, but must be super scary for a young…"
4 hours ago
Worried mum left a comment for RollerCoasterMom
"Hi roller coaster mum Great name- I can identify with it completely. My daughter was 6 when she…"
5 hours ago
Spencer replied to Nutty's discussion GBS and Shaky Hands
"I'm about 14 months since my GBS.  No shakey hands here but my feet are still a little…"
11 hours ago
Spencer replied to RollerCoasterMom's discussion Hi - we are new to this support group
"I'm so sorry to hear that your 3 year old son has GBS.  It was frightening enough for me…"
11 hours ago

Top Content 

1 hello, new here

hello, new here

Posted by Timity on July 9, 2014

2 Is this gbs?

Is this gbs?

Posted by Momof2 on July 10, 2014

3 My GBS Story And A Somewhat hopeless Question

My GBS Story And A Somewhat hopeless Question

Posted by Ola on June 27, 2014

4 Recurrent symptoms

Recurrent symptoms

Posted by Jim on July 15, 2014

5 Advice please...

Advice please...

Posted by Rachel on July 17, 2014


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Blog Posts

June 2014 Community Newsletter

Posted by Ben Munoz on June 30, 2014 at 11:30am 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…

my daughter Danielle

Posted by Evelyn Thomas on June 7, 2014 at 2:11am 1 Comment

While in the hospital my daughter appeared dead and code blue was called. I was crying and praying they put her two babies and me out.only to find she was just frozen but could hear. Is this normal?

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