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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Setback with New Activity

Started by Tarhealing in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lily 5 hours ago. 13 Replies

I have been doing great four months into recovery. Some days now I actually feel so  much like my old self that I forget about my limitations. Yesterday, I did the reduced workout on an exercise DVD. Last night, I struggled with back, neck, and…Continue

No Improvement in 7 weeks from my coma like Dad

Started by calaan in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Chunk 7 hours ago. 4 Replies

My Dad has had little to no improvement in the last 7 weeks of diagnosis, he's still on the vent and is unresponsive (even his eyes) 99% of the time.  He had the immunoglobin treatment, and the plasmaphresis.  He seems to have some better days where…Continue

nutritional supplements

Started by Lily in General. Last reply by tirane56 13 hours ago. 4 Replies

Has anyone had success or experience treating their GBS symptoms with nutritional supplements? Since being diagnosed in early July 2014 and 5 IVIG treatment I've been getting progressively better. However, I am developing tremors in my hands that I…Continue

Do vitamins help

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lily 17 hours ago. 60 Replies

Do vitamins help at all to speed recovery of the myelin regrowth and can they helpReduce the numbness/ pins and needles in your arms to fingertips, knees to toes?Love this site, the support is so appreciated :)Thanks so much, GayleenContinue

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Latest Activity

Lily replied to Tarhealing's discussion Setback with New Activity
"Wow, that's a lot. thanks for sharing. "
5 hours ago

dancermom and tirane56 are now friends
6 hours ago

Scott Orn left a comment for Chunk
"Huge welcome Chunk! One tip, if you have specific questions it's best to start a New…"
7 hours ago
Chunk replied to calaan's discussion No Improvement in 7 weeks from my coma like Dad
"QweensGambit may be on the right track. IVIG didn't produce much in the way of results for me…"
7 hours ago

dancermom left a comment for Chunk
"Welcome, Chunk, to this supportive community. Feel free to open a discussion to introduce yourself…"
8 hours ago
Chunk is now a member of Guillain-Barre Support - Online Support Group
8 hours ago

Scott Orn left a comment for Beau
"Big welcome Beau! One tip, if you have specific questions it's best to start a New Discussion…"
9 hours ago

Scott Orn left a comment for Emmy
"Big welcome Emmy! One tip, if you have specific questions it's best to start a New Discussion…"
9 hours ago

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 10:36pm 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


A recovery story from Turkey

Posted by Selda on October 3, 2014 at 3:13pm 1 Comment

Hello there ,

I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue

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