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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
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We really need your help! Please donate, even if it's $5, that will really help.

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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Full Recovery IS possible folks!

Started by Pete S in General yesterday. 0 Replies

Very encouraging article printed in the Saturday, January 24th edition of the Log Cabin Democrat newspaper in Conway, Arkansas -- a suburb of Little Rock. New University Of Central Arkansas women's volleyball coach, Jeni Jones, tells her…Continue


Started by AMA in General. Last reply by AMA on Sunday. 15 Replies

Hello All:My very good friend has been in the hospital with Miller Fisher Syndrome/GBS since the beginning of September, only a few days after delivering her first baby and moving into a new house.  After almost four months, she finally opened her…Continue

Had bad flu ..wirrird

Started by Dawn Posner in General. Last reply by Tarhealing on Saturday. 3 Replies

Hi everyone, diagnosed oct. 18,2014 campylobacter GI infection completely numb. Came down with the flu in New York Christmas day so sick left to drive home to Texas on the 2.5 day trip while sitting I feel like a paralyzed person that can move arms…Continue

New Member

Started by ah1979 in General. Last reply by Tarhealing on Saturday. 12 Replies

Hi I'm Andy and new to the sight.....and unfortunately new to GBS as well.  Really glad that there is a site like this out for support because I'm finding that it's a condition that no one really understands unless they've been through it.Quick back…Continue

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Latest Activity

LanceB left a comment for EmilyD
"Welcome to the forum, Emily! Feel free to ask questions and participate in the various discussion…"
2 hours ago
Profile IconEmilyD and Erin joined Guillain-Barre Support - Online Support Group
2 hours ago
ah1979 liked Pete S's discussion Full Recovery IS possible folks!
21 hours ago

LanceB left a comment for Erin
"Welcome to the forum, Erin! Feel free to ask questions and participate in the various discussion…"

dancermom liked Pete S's discussion Full Recovery IS possible folks!
RoanokeRN liked Joy wilfong's blog post today
RoanokeRN commented on Joy wilfong's blog post today
"I was diagnosed Nov 18, 2014. I was toldby my rehab MD it would take me about 4 to 6 months to get…"

mdolich and RoanokeRN are now friends

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.




Blog Posts


Posted by Joy wilfong on January 22, 2015 at 7:25am 1 Comment

Today I seem weaker then I have in a year gbs, took a part of me everyone said id get better but I haven't its been a year and a have and I'm blessed for what I can do but the not feeling thing really sucks I miss feeling my daughters beautiful…


Breathing Problems years later....

Posted by EricaK on January 15, 2015 at 11:55pm 0 Comments

I have a question for all of you GBS warriors out there.  I was diagnosed with GBS in October 2008 and didn't have many residual symptoms after I completed my IVIG treatments.  Fatigue, yes, and occasionally feeling wiped out.  I also lost the…


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