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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Plummeting Heart Rate

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by LanceB 4 hours ago. 8 Replies

Has anyone had experience with a plummeting heart rate? My brother-in-law Jim has been fighting Guillian Barre for almost 70 days! He was paralized from neck down. He has made very little progress but we are happy with small gains. The biggest…Continue

My GBS experience in a nutshell

Started by Spencer in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Spencer 6 hours ago. 4 Replies

My GBS started in May of 2013.  Couple days before coming down with GBS, my fingers on both hands and toes on both foot were numb and tingly.  Several weeks before the GBS I was having some kind of upper respiratory ailment.  I went to see my doctor…Continue

Will I ever get my "balance" back??

Started by page in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Gayleen yesterday. 8 Replies

My balance is non existent.In my head I can still make it down those stairs or even step on to that curb.. But I can't. I had this beautiful moment the other day where I thought I was normal & healthy again..I went down my 2 front porch steps,…Continue

GBS from Stress

Started by Spencer in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Tarhealing yesterday. 15 Replies

Prior to me coming down with GBS, my stress level was pretty high.  Now that I'm almost back to normal and back to work, my stress level is creeping up again.  Is there a correlation between stress and GBS?  Did any of you have high stress before…Continue

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Latest Activity

LanceB replied to Ms.AmuseBouche'Photog's discussion Plummeting Heart Rate
"Great to hear that, Ms.Amuse! Going from the ICU to a less-intesive facility is a big step in…"
4 hours ago
Spencer replied to Spencer's discussion My GBS experience in a nutshell
"Hi mamabear, I was 56 when I came down with GBS.  The medical staff pretty much ruled out…"
6 hours ago

Scott Orn left a comment for EBettridge
"Hi EBettridge - welcome! One tip, if you have specific questions it's best to start a New…"
7 hours ago
Ms.AmuseBouche'Photog replied to Ms.AmuseBouche'Photog's discussion Plummeting Heart Rate
"Thanks everyone! He is out of ICU at the hospital but in a LTAC facility. I am hoping some of the…"
7 hours ago

mdolich left a comment for EBettridge
"Welcome to our family EBettridge. I'm sure you'll find a lot of great information here.…"
10 hours ago
Mike left a comment for Mike
"Hi Guys, Thank you all for the warm welcome. Really feels good to be among a community that…"
13 hours ago
JamesP commented on janice bisset's group music
"I play piano and bass - a lot, but cant even get a single note out of either now. I should be doing…"
15 hours ago
JamesP joined janice bisset's group
15 hours ago

Top Content 

1 Untitled


Posted by Tally on August 11, 2014

2 I'm New Here - My Story

I'm New Here - My Story

Posted by Pete S on August 10, 2014

3 Muscle Twitches

Muscle Twitches

Posted by Tarhealing on August 24, 2014

4 GBS from Stress

GBS from Stress

Posted by Spencer on August 26, 2014

5 This is getting so old

This is getting so old

Posted by Lily on August 7, 2014


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Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 10:04pm 1 Comment

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


1 year later

Posted by Deborah Yount on August 21, 2014 at 3:17am 9 Comments

I was diagnosed with GBS a year ago (Aug. 10, 2013). I was wondering if there was anyone else out there like me. I will be 50 years old in a few months and when I was diagnosed with GBS I was also going through menopause. I have made great progress… Continue

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