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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


week one

Started by bekki in General. Last reply by Gayleen 1 hour ago. 12 Replies

Hi everyone, good morning,I'm new to chat groups, and new to HIS, so I hope I'm doing this correctly. My Dad is 6 days into this terriblness. Last Sat, he felt a little punky, today he's on full life support, and paralyzed.  We talk to him every…Continue

Week one

Started by Petr in General 12 hours ago. 0 Replies

I was paralyzed from the waist down with excruciating back pain and shooting nerve pain in my legs and feet. Several things bothered me in the first day or two and that was the uncertainty of my condition. But when I heard I had GBS and could expect…Continue

Immunoglobulin treatment

Started by Beau in General. Last reply by Beau yesterday. 13 Replies

This is now day 18 of my GBS. I did have my immunoglobulin treatment over 5 days and the disease stopped spreading and I dare say I have improved a bit. I am still week in my hands and arms and feet and legs.I asked the doctor if I will eventually…Continue

Abdominal bloating?

Started by Eric in General. Last reply by jaco167 yesterday. 1 Reply

We're on day 2 of 5 on the IVIG treatment. Today, I saw my dad stand for the first time since coming to the hospital. He still can't walk, but he defiantly stood for about 90 seconds! Man, was I proud...I've noticed some abdominal bloating,…Continue

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Latest Activity

Gayleen replied to bekki's discussion week one
"Hi Myrna, I was on a ventilator, without movement trunk, arms legs for two months, I had an awesome…"
1 hour ago
myrna replied to bekki's discussion week one
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3 hours ago
myrna replied to bekki's discussion week one
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3 hours ago
myrna replied to bekki's discussion week one
"Oh, my gosh, you described my patient. It seems so hopeless at first, then by some tiny little…"
3 hours ago
Jerimy replied to bekki's discussion week one
"Hi Bekki and sorry to hear about your Dad. Here is a great example of a communication board you can…"
11 hours ago
Petr posted a discussion

Week one

I was paralyzed from the waist down with excruciating back pain and shooting nerve pain in my legs…See More
12 hours ago
bekki replied to bekki's discussion week one
"Kathleen, very helpful......I'm that person that would rush in and try to fix everything, I…"
14 hours ago
bekki replied to bekki's discussion week one
" "
14 hours ago

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 10:36pm 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


A recovery story from Turkey

Posted by Selda on October 3, 2014 at 3:13pm 1 Comment

Hello there ,

I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue

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