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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.
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"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.
Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.
Started by Robert in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by dancermom yesterday. 12 Replies 0 Likes
I was in the U.S. Army when I contracted GBS. It was 1981 and I was at ft. Sam Houston learning to be an X=ray technician. I received a flu shot approx 2 weeks before the GBS took hold , my first symptoms were my feet tingled and my energy seemed…Continue
Started by Armando Abrero in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) on Wednesday. 0 Replies 0 Likes
Ben Munoz and Ben's Friends Patient Communities were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.…Continue
there has been recent national news regarding the 'epidemic' of a polio-like illness in children that results in quick paralysis.... often following a cold.Hmmm, GBS anyone? they are not looking at this as a cause.... it's so frustrating. and I see…Continue
Started by Charlene Ako in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by DLARLICK on Wednesday. 13 Replies 0 Likes
My son had this GBS from Nov. 2013. He got it from a cold. He kept working from Nov.till the ending of Jan. 2014. He was having hard time standing and focusing at work. Finally his job told him go home and come back when u get better. When u got…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
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Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to: firstname.lastname@example.org.