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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.

Forum

Muscle spasms in odd places

Started by Dollywood in General. Last reply by Jessica 2 hours ago. 12 Replies

I am 11 months out in my recovery from GBS and doing quite well.  But I do have a question that I have not seen posted here.  The question is has anyone else experienced muscle spasms during recovery.  I am experiencing them along my sides between…Continue

Headaches?

Started by rockthecasbah121 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Tally 2 hours ago. 4 Replies

Did anyone else have headaches during the plateau and recovery phase of their GBS? I keep getting frequent headaches that aren't too painful but enough to notice. I'd say I probably get close to everyday in the afternoon during work and have…Continue

Do these infusion treatments actually do anything?

Started by QweensGambit in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by mdolich 4 hours ago. 12 Replies

I have these infusion treatments every three weeks. This is my second time having them. The first time I did them for six months and I thought maybe they were helping but I am not sure. I stopped for awhile( because of a complicated mess having to…Continue

Accupuncture?

Started by dvmwoof in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) 5 hours ago. 0 Replies

Has anyone worked with an acupuncturist on nerve recovery?Continue

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Latest Activity

Jessica replied to Dollywood's discussion Muscle spasms in odd places
"As of today I am one year out from recovering from GBS after an appendectomy. I still have the…"
2 hours ago
Tally replied to rockthecasbah121's discussion Headaches?
"I also have headaches daily. Wake up with them too. Had Ivig in May of this year."
2 hours ago
Nebretta replied to rockthecasbah121's discussion Headaches?
"I did not get headaches.  Hope you get this one figured out.  I do recall feeling about…"
2 hours ago

Moderator
mdolich replied to QweensGambit's discussion Do these infusion treatments actually do anything?
"The booklet I mainly used was the one in the center of the photo, GBS/CIDP -…"
4 hours ago

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - October 2014 Issue

Just the Stats: Communities: 38 Friends: 43,500+Connecting to others in a similar circumstance is…See More
4 hours ago
dvmwoof posted a discussion

Accupuncture?

Has anyone worked with an acupuncturist on nerve recovery?See More
5 hours ago
QweensGambit replied to QweensGambit's discussion Do these infusion treatments actually do anything?
""I even had one doctor (not a neuro) tell me there was no such thing as GBS/CIDP, I…"
15 hours ago

Moderator
mdolich replied to QweensGambit's discussion Do these infusion treatments actually do anything?
"I think we all know how you feel. So many times I hear "Nobody understands or believes me when…"
20 hours ago
 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 10:36pm 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

A recovery story from Turkey

Posted by Selda on October 3, 2014 at 3:13pm 1 Comment

Hello there ,



I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue

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