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Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system, the portion of the nervous system that is outside the brain and spinal cord. It is usually caused by an acute infectious process. The patient's immune system attacks good tissue, which in this case is the nerve cells communicating with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. As these sensations spread, the entire body may become paralyzed. Full recovery is possible but may take considerable time.
Has anyone been diagnosed around 7 months ago? My torture still going on, GBS did affect almost whole of body, was in hospital/re-hab for 2 months, couldn't walk for most of that time, can walk now with a stick, although limited, is still very hard.…Continue
Has anyone had vestibular problems? I am still suffering from a reflare of symptoms following a resolved sinus infection in February 2015. For about 3 weeks, I have been having vestibular ocular trouble affecting my vision, hearing briefly and…Continue
I had GBS 20 years ago. I was lucky to be diagnosed within 2 days and had plasmapherisis for 2 weeks. I was unable to walk and had difficulty using my hands and arms but was never on a ventilator. I was in a wheelchair for about 4 months and then on…Continue
I'm a 20+ year survivor of GBS and although we experience different levels of pain, one that stands out and is most common is "the burning sensation"...can you share some of your remedies? What works for one person, may not work for another so maybe…Continue
it has been exactly one year and two weeks since they diagnosed me with GBI am slowly recovering with lots of exercise but my legs and hip area seems to get real tight.I am still not able to fully balance myself.bottom of my feet tingles a lot so I…Continue
I'm currently in Week 34 weeks of pregnancy so 6 weeks or less the baby could come. I wanted to find out how others delivered: with epidural vs anesthisia and if you had any flare ups with the GBS? I'm trying to figure out if I should try to do…Continue
Hi Everyone, I am the wife of a GBS patient. He has a severe case. My husband, Paul, is 39 and very active, plays sports 2 or 3 times a week. We have two small boys 2 years old and the other 10 months. They have not seen daddy in 3 weeks. He…Continue
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