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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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About

 

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Ben's Friends Now a Non-Profit 501(c)(3) Organization

This enables all donations to be tax deductible (starting with any made from July 2013), makes us eligible for corporate donations and matching gifts, and gives us access to grants and foundations (dramatically widening our donor pool), and provides benefits reserved for nonprofits (such as Google Ads credits).
This status will help us realize our ultimate goal - to ensure everyone affected by a rare disease has a safe place to go (our communities!) to connect with someone like them.
Thank you, Members and Moderators, for hanging in there with us and never wavering as we went through this difficult process. Now the real work can begin!
If anyone has any ties to grants, foundations, or partners who can help 501(c)(3) organizations, or if you have any past experience writing grant applications, please email us at partners@bensfriends.org

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Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.

Forum

food and GBS

Started by doda in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by doda yesterday. 3 Replies

http://m.youtube.com/watch?v=KLjgBLwH3WcI heard that what you eat is very important for those with autoimmune disease. I like and I believe that's true. I had some problems with allergy and…Continue

Mild GBS

Started by Rosemarie kaupp in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Rosemarie kaupp on Wednesday. 3 Replies

I am not paralyzed and know I am very lucky. I never knew there is mild GBS. Yet, it is very hard to get activities of daily living done due to extreme fatigue and feeling very "shaky" in my muscles. It is difficult to go out as I get so exhausted.…Continue

Diagnosed with Mild Case of Gullian Barre Syndrome Many Questions

Started by missa in General. Last reply by Rosemarie kaupp on Tuesday. 14 Replies

I was diagnosed with Gullian Barre Syndrome on July 16th by the nuerologist at the hospital at was admitted in.  I stayed there a week while they observed me and did many tests.  All tests did not show GBS but my symptoms did.  The nuerologist told…Continue

pain

Started by jamie77 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by QweensGambit on Sunday. 3 Replies

My daughter, Jamie, has been experiencing severe pain in fingers and toes. It has been about 8 days since she completed the IMG treatments. Did others find that increasing the Neurontin decreased the pain or frequency?Continue

Latest Activity

doda replied to doda's discussion food and GBS
yesterday
Ninibeth and Rosemarie kaupp are now friends
Thursday
ramgbs replied to doda's discussion food and GBS
"its a good idea to try to reduce the Bad foods ,there is a lot of info it is good to Start with…"
Wednesday
deltarat replied to doda's discussion food and GBS
"I don't know first hand about this, as I seem to be able to eat anything I want (and I am…"
Wednesday
Rosemarie kaupp replied to Rosemarie kaupp's discussion Mild GBS
"br/> "
Wednesday
Rosemarie kaupp replied to Rosemarie kaupp's discussion Mild GBS
" "
Wednesday
doda posted a discussion
Wednesday
doda replied to Rosemarie kaupp's discussion Mild GBS
"Hi Rosemarie, my daughter had mild GBS two years ago, but now she is diagnosed CIDP,its chronic…"
Wednesday

Top Content 

1 Shoes

Shoes

Posted by Molly on March 24, 2014

2 PEG Problems?

PEG Problems?

Posted by mozart on March 24, 2014

3 Feeling "normal"

Feeling "normal"

Posted by Melissa Michael on February 17, 2014

4 Kids and GBS?

Kids and GBS?

Posted by laetari on March 19, 2014

5 Life after GBS

Life after GBS

Added by Jaguar John on February 14, 2014

Bens Friends Blog

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Best of Ben's Friends

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What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to:  info@bensfriends.org.

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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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"TO KNOW THE JOY OF GIVING"

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Blog Posts

Community Newsletter

Posted by Ben Munoz on March 3, 2014 at 9:00pm 0 Comments

Dear GBS Family and Friends,

We're very happy to announce that we were just approved as an official nonprofit by the IRS!!
This means that we are eligible for corporate and…
Continue

Part 2 The situation

Posted by Ape on February 28, 2014 at 9:28am 0 Comments

Jim spent nearly four years trapped inside himself. To the casual observer he appeared to be in a coma like state, but he later explained that he had heard and was aware of what was going on around him. He told me about my visit to the home where…

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