Welcome

Welcome! You're not alone.

How to get started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group

Questions
Check our FAQ PAGE and First-Time-User Guide.

Privacy

Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

To change your username, click here. 

Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

OUR GUIDELINES

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content should be restricted to the prayer group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Mark
LanceB
 

What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system, the portion of the nervous system that is outside the brain and spinal cord. It is usually caused by an acute infectious process. The patient's immune system attacks good tissue, which in this case is the nerve cells communicating with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. As these sensations spread, the entire body may become paralyzed. Full recovery is possible but may take considerable time.

Forum

I'm worried

Started by Robin in New member introductions 7 hours ago. 0 Replies

I had GBS in 1991. After going through everything I recovered ok but the last 5 years I've been really tired and my joints are starting to hurt. I used to be so active and now I'm just tired and weak. What is going on?

Presumed GBS...desperate for input and struggling

Started by Blessedmum in New member introductions. Last reply by Blessedmum 8 hours ago. 18 Replies

Hello everyone,I hope this posts correctly in the introductions area? I was struck down by some odd mysterious illness almost exactly one year ago on Aug 26th, 2014. I was out walking with my little ones when my feet began to tingle and feel…Continue

feeling weempy

Started by kel in General. Last reply by Rosebud59 yesterday. 26 Replies

i having a little numbness and tingling going on.  my face is numb and tingling only on right side then i am having pin brick or bee sting feelings in face,  neck,  arms,  muscle cramps along with burning and tingling in feet and hand and the…Continue

Hi everyone- I feel i owe this forum a story

Started by cig in General yesterday. 0 Replies

Hi' 10 years ago, when my husband was sick as a dog ( 3 months in ICU 5 months ih hospital rehab) I recieved a lot of support from this forum. About a year after our illness my husband was left with facial palsy, weak hands, drop feet,  sleep apnea…Continue

Tags: recvery, delayed

Johns Hopkins

Started by glightcap in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) on Thursday. 0 Replies

Has anyone been treated by Dr. Corse or Dr. Cornblath at Johns Hopkins hospital?

I thought I had this under control

Started by neverplan in General. Last reply by neverplan on Thursday. 13 Replies

Hi everyone!I've been a bit MIA for a while because of some health issues that arose in the last year.If you read my story before, you might know a bit of my background but just to give you a quick backstory, I had GBS about 20 years ago and yes…Continue

Central nervous system issues

Started by A Mom on Spin in General. Last reply by kel on Tuesday. 3 Replies

Hello all ~My 23-year-old daughter has been recovering from what was diagnosed as a mild case of GBS in April 2014. Since then she has suffered a number of set backs but the latest seems to be involving her central nervous system. The neurologist is…Continue

How it began...

Started by glightcap in New member introductions. Last reply by glightcap Aug 25. 4 Replies

Mid June 2015, I started experiencing slight tingling in my hands and feet.  Also noticed a little weakness the  while walking.  I thought it was sciatica.  I went to the doctor.  They did an xray and spinal stenosis showed up.  I went to physical…Continue

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Latest Activity


Moderator
LanceB left a comment for Gouda
"Welcome to the forum, Gouda! We hope you will feel comfortable here, there are many supportive…"
6 hours ago
Profile IconGouda, Robin, David Gollan and 2 more joined Guillain-Barre Support - Online Support Group
6 hours ago

Moderator
LanceB and Robin are now friends
6 hours ago
Robin posted a discussion

I'm worried

I had GBS in 1991. After going through everything I recovered ok but the last 5 years I've been…See More
7 hours ago
Blessedmum replied to Blessedmum's discussion Presumed GBS...desperate for input and struggling
"Hang in there, Shirley!  It took me close to 8 months in before I was able to start walking a…"
8 hours ago
Blessedmum replied to Blessedmum's discussion Presumed GBS...desperate for input and struggling
"Thanks so much for responding!  The whole lyme thing is such a huge mess, isn't it? I was…"
8 hours ago
Blessedmum replied to Blessedmum's discussion Presumed GBS...desperate for input and struggling
"My goodness! I can't believe the outpourings of responses and support! A heartfelt thank you…"
8 hours ago
Robin posted a status
"I'm very scared and wonder if I might have CIPD?"
11 hours ago

Top Content 

1 feeling weempy

feeling weempy

Posted by kel on August 16, 2015

2 Presumed GBS...desperate for input and struggling

Presumed GBS...desperate for input and struggling

Posted by Blessedmum on August 26, 2015

3 Setback or relapse at the 11 month mark? Desperate for help

Setback or relapse at the 11 month mark? Desperate for help

Posted by Blessedmum on August 21, 2015

4 Post BBS arthritis, specifically spinal stenosis

Post BBS arthritis, specifically spinal stenosis

Posted by Charles on August 11, 2015

5 Central nervous system issues

Central nervous system issues

Posted by A Mom on Spin on August 25, 2015

 
 
 

© 2015   Created by Ben Munoz.   Powered by

Badges  |  Report an Issue  |  Terms of Service