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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Alpha Lipoic Acid / R - Lipoic Acid

Started by Nostromo in Complementary Therapies. Last reply by Kimberly 2 hours ago. 5 Replies

Has anyone had much experience with Alpha Lipoic Acid or R-Lipoic Acid?  It looks like it might help with general neuropathy.  The R-form is supposed to be much more bioavailable and effective so that's what I picked up.  I've read some stories…Continue

Brother diagnosed with GBS/MFS on Feb 13

Started by mpg in Symptoms 19 hours ago. 0 Replies

My brother was diagnosed with Miller Fisher Syndrome and GBS on Feb 13, 2015.  He is being weaned from ventilator but it feels like we go 10 steps forward and 5 steps back.  Does anyone have a relative or friend that has both MFS and GBS?  I am also…Continue

GBS Symptoms - Arm, hand, and leg shaking

Started by aflynn in Symptoms. Last reply by Tarhealing on Friday. 5 Replies

My husband was diagnosed in December of 2014 with GBS.  Although he has come a very long way in his recovery.  His hands and arms were definitely hit the worst with paralysis and OT has certainly helped with this.  My concern is that he seems to…Continue

Nerve Sensitivity

Started by Tarhealing in Symptoms. Last reply by Tarhealing on Friday. 3 Replies

Does anyone has nerve sensitivity below their knees in their calves?  I am about 5 months out recovering from mild Guillain Barre.  One of my lingering problems seems to be a strange sensitivity just below my knee cap that now extends into the front…Continue

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Latest Activity

Kimberly replied to Nostromo's discussion Alpha Lipoic Acid / R - Lipoic Acid
"I've been taking it since I returned home (end of May 2014) along with some other supplements.…"
2 hours ago

Scott Orn left a comment for Hayley Edwards
"Big welcome Hayley! One tip, if you have specific questions it's best to start a New…"
3 hours ago

LanceB left a comment for Hayley Edwards
"Welcome to the forum, Hayley! We hope you will feel comfortable here, there are many supportive…"
5 hours ago
Profile IconHayley Edwards and mpg joined Guillain-Barre Support - Online Support Group
5 hours ago
mpg posted a discussion

Brother diagnosed with GBS/MFS on Feb 13

My brother was diagnosed with Miller Fisher Syndrome and GBS on Feb 13, 2015.  He is being weaned…See More
19 hours ago

Scott Orn left a comment for mpg
"big welcome mpg! One tip, if you have specific questions it's best to start a New Discussion…"

LanceB left a comment for mpg
"Welcome to the forum, mpg! We hope you will feel comfortable here, there are many supportive…"
Scorpio1 commented on Koi~Girl's blog post Hope
"Hi, I have just been discharged from hospital after having a relapse, was originally diagnosed and…"

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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Blog Posts

Australian GB

Posted by Sarella on March 29, 2015 at 6:11am 0 Comments

Please can I talk to you? I live in rural nsw.

I had the comatose, ventilator , paralysis up to the eyeballs type of GB, I got diagnosed on my 27th birthday after what I thought was a severe case of saddle soreness after horse… Continue

Getting the word out about GBS

Posted by Deborah Yount on March 26, 2015 at 4:32am 0 Comments

I was wondering if there is someway I could get involved to help spread the word about GBS? Is there a study going on anywhere that is in need of any help?

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