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If your family has been affected by Guillain-Barre Syndrome , consider Guillain-Barre Syndrome Support your second home.


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What is Guillain-Barre Syndrome?

Guillain-Barre syndrome (GBS) is a rare but serious autoimmune disorder that affects the peripheral nervous system. It is usually caused by an acute infectious process. The peripheral nervous system is the portion of the nervous system that is outside the brain and spinal cord.

Autoimmune means the patient's immune system goes wrong and attacks good tissue, which in this case are nerve cells which communicate with muscles. The individual with Guillain-Barre syndrome will initially experience a tingly and numbing sensation in the limbs, as well as weakness in the same areas. If these sensations spread, which they often do, the entire body eventually becomes paralyzed. Typically, person with Guillain-Barre syndrome experiences symptoms start in the lower limbs and eventually spread upwards.


Relapse??? (I hope not)

Started by Valaveria in General. Last reply by QweensGambit 1 hour ago. 13 Replies

Hi all and thank you for accepting me to your group.I had GBS back in 1997.  I won't go into the full story of that here, but I will tell you that I thought of that period of my life done and over.  My only reminders of that are the 'pins and…Continue

Anyone going to the GBS Symposium in Orlando?

Started by John W Graham in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Tarhealing 15 hours ago. 1 Reply

Having had GBS 8 years ago I have always wanted to go to the annual conference but it was always in other parts of the country.  This year it is in Orlando Oct 31-Nov2 so I'm heading up to Orlando to attend.Anyone in this group going?Continue

Muscle spasms in odd places

Started by Dollywood in General. Last reply by Dollywood yesterday. 11 Replies

I am 11 months out in my recovery from GBS and doing quite well.  But I do have a question that I have not seen posted here.  The question is has anyone else experienced muscle spasms during recovery.  I am experiencing them along my sides between…Continue

Life after GBS

Started by Lily in General. Last reply by hautemess yesterday. 12 Replies

Should I ever get immunized? Before getting GBS I planned to get the shingles vaccine, and I usually get a flu shot every year. Will I be more susceptible to getting this horrible syndrome again than the average person? I'm counting on getting…Continue

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Latest Activity

QweensGambit replied to Valaveria's discussion Relapse??? (I hope not)
"I think you should go to the doctor and tell him you had GBS and you think you are having a…"
1 hour ago
Nojabold replied to Valaveria's discussion Relapse??? (I hope not)
"I'm only 11 months into recovery, but I did notice when I go the flu a few month back my arms…"
7 hours ago
Kathy Cooper liked Valaveria's discussion Relapse??? (I hope not)
8 hours ago
Kathy Cooper replied to Valaveria's discussion Relapse??? (I hope not)
"stupid phone!!! uhg!!!"
8 hours ago
Kathy Cooper replied to Valaveria's discussion Relapse??? (I hope not)
"sorry phone acting up 2) if high proteins, you l"
8 hours ago
Kathy Cooper replied to Valaveria's discussion Relapse??? (I hope not)
"Its Your life. No one will ever SEE your burning pain. U have to go in to the ER and sound sure og…"
8 hours ago
LanceB replied to Valaveria's discussion Relapse??? (I hope not)
"So sorry to hear that your husband is being less than fully supportive. Please have him read some…"
9 hours ago
kimberpat12 liked Valaveria's discussion Relapse??? (I hope not)
10 hours ago

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Blog Posts

A recovery story from Turkey

Posted by Selda on October 3, 2014 at 3:13pm 1 Comment

Hello there ,

I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 10:45pm 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+

In this issue…


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