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Help Patients Just Like You By Joining Our Team Fundraising Campaign

ANNOUNCING OUR ANNUAL BENS FRIENDS FUNDRAISER!! All of our patient communities are banding together to raise funds by creating their own fu…

Started by Ben Munoz in GeneralLatest Reply

weakness in odd places

Hi all, wondering if anyone have anything similar. It's been 8 months since my 11yrs old recovering from GBS. She's been having some abdomi…

Started by Evalyn in GeneralLatest Reply


Hello all, While I'm quite active myself on the Sjogren's Syndrom support page, this is my first time posting here. Unfortunately my three…

Started by A Mom on Spin in SymptomsLatest Reply

Categories Discussions Latest Activity


General discussion.

281 yesterday
GBS Attack and general anastetic
by Beau

Complementary Therapies

Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with GBS.

9 Dec 30, 2014
Reply by sjremitz


GBS is at best a unique disease, and we all feel like we are equally unique (maybe even weird.) But that isn't the case. Please list symptoms so everyone knows they aren't the only one. How it started how it was, and how it is now.

48 Jan 4
Reply by Penny

Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

Want to recommend a doctor, therapist, or clinic? Positive review only, please.

2 Nov 17, 2014
Reply by dancermom

Emotional Support

Everyone needs a sympathetic ear now and then.

9 Dec 2, 2014
Reply by Jaguar John


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Blog Posts


Posted by Joy wilfong on January 22, 2015 at 7:25am 1 Comment

Today I seem weaker then I have in a year gbs, took a part of me everyone said id get better but I haven't its been a year and a have and I'm blessed for what I can do but the not feeling thing really sucks I miss feeling my daughters beautiful…


Breathing Problems years later....

Posted by EricaK on January 15, 2015 at 11:55pm 0 Comments

I have a question for all of you GBS warriors out there.  I was diagnosed with GBS in October 2008 and didn't have many residual symptoms after I completed my IVIG treatments.  Fatigue, yes, and occasionally feeling wiped out.  I also lost the…


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