Forum Discussions (300)

Featured Discussions

Setback with New Activity

I have been doing great four months into recovery. Some days now I actually feel so  much like my old self that I forget about my limitatio…

Started by Tarhealing in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

great timing

Hi everyone, I was talking to my daughter in Colorado today and just balling, because I miss her and my three grandsons and I would give an…

Started by mallory in GeneralLatest Reply

No abnormal EKG/NCS

I had an emg/ncs done today and the doctor who performed it stated that nothing stood out as abnormal. I'm about four weeks in and my legs…

Started by rockthecasbah121 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Discussions Replies Latest Activity

Relapse??? (I hope not)

Hi all and thank you for accepting me to your group. I had GBS back in 1997.  I won't go into the full story of that here, but I will tell…

Started by Valaveria in General

13 4 hours ago
Reply by QweensGambit

Anyone going to the GBS Symposium in Orlando?

Having had GBS 8 years ago I have always wanted to go to the annual conference but it was always in other parts of the country.  This year…

Started by John W Graham in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

1 19 hours ago
Reply by Tarhealing

Muscle spasms in odd places

I am 11 months out in my recovery from GBS and doing quite well.  But I do have a question that I have not seen posted here.  The question…

Started by Dollywood in General

11 yesterday
Reply by Dollywood

Life after GBS

Should I ever get immunized? Before getting GBS I planned to get the shingles vaccine, and I usually get a flu shot every year. Will I be m…

Started by Lily in General

12 yesterday
Reply by hautemess

Do these infusion treatments actually do anything?

I have these infusion treatments every three weeks. This is my second time having them. The first time I did them for six months and I thou…

Started by QweensGambit in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

0 yesterday

GBS in the facial nerves

I was diagnosed with GBS in December, 2013.  It attacked my facial nerves and  lost all movement in my face. My mouth and eyes would note c…

Started by Momofjoy in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

5 yesterday
Reply by Tarhealing

Setback with New Activity

I have been doing great four months into recovery. Some days now I actually feel so  much like my old self that I forget about my limitatio…

Started by Tarhealing in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

11 yesterday
Reply by Lisa Cremeans

No abnormal EKG/NCS

I had an emg/ncs done today and the doctor who performed it stated that nothing stood out as abnormal. I'm about four weeks in and my legs…

Started by rockthecasbah121 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

8 on Monday
Reply by rockthecasbah121

Is touching them painfull?

As I have read peoples posts a lot of people say that they have a burning pain in different parts of their bodies.  Some have compared it t…

Started by Calaan's Mom in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

4 on Monday
Reply by Nojabold

Do vitamins help

Do vitamins help at all to speed recovery of the myelin regrowth and can they help Reduce the numbness/ pins and needles in your arms to fi…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

59 Oct 17
Reply by Tally

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A recovery story from Turkey

Posted by Selda on October 3, 2014 at 3:13pm 1 Comment

Hello there ,



I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 10:45pm 0 Comments

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