Forum Discussions (278)

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Plummeting Heart Rate

Has anyone had experience with a plummeting heart rate? My brother-in-law Jim has been fighting Guillian Barre for almost 70 days! He was p…

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Do vitamins help

Do vitamins help at all to speed recovery of the myelin regrowth and can they help Reduce the numbness/ pins and needles in your arms to fi…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Will I ever regain my full body functions

I was diagnosed with GBS on Nov 2011 at 30 years old I am 33 and still need assistance to walk my left side of my body still has a lot of w…

Started by Melissa in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Discussions Replies Latest Activity

My dad seems to be in a coma

My dad was diagnosed 2 weeks ago, he is currently in the icu on a ventalator, he hasn't been able to wake up since they put the trach in an…

Started by calaan in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

19 24 minutes ago
Reply by Tarhealing

new attitude

I am new to this whole world.  I was diagnosed on July 26, 2014.  in my earlier life I battled leukemia at the ages of ten, sixteen and nin…

Started by dvmwoof in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

1 55 minutes ago
Reply by Tarhealing

Extreme hip joint back pain on one side after physio

Yikes, I know some of you are dealing with back pain with your GBS, I am not sure if I'm dealing with a GBS thing or a pinched nerve/ sciat…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

5 yesterday
Reply by Gayleen

what now

Im on the tail end of this syndrome and it hascompletely changed everything in my life, its been a year and i dont know if ill ever be the…

Started by Timity in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

4 yesterday
Reply by Nojabold

Life after GBS

Should I ever get immunized? Before getting GBS I planned to get the shingles vaccine, and I usually get a flu shot every year. Will I be m…

Started by Lily in General

5 on Thursday
Reply by mamabear

Plummeting Heart Rate

Has anyone had experience with a plummeting heart rate? My brother-in-law Jim has been fighting Guillian Barre for almost 70 days! He was p…

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

9 on Thursday
Reply by Lisa Topaz

Fatiguing Out

I'm back at work but struggling with fatigue by the end of the day. I'm doing PT twice a week to help me strengthen my core again and stret…

Started by Tarhealing in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

5 on Thursday
Reply by Bergerhoo

nerve pain

My husband Dave was diagnosed with Guillian-Barre Syndrome on June 3rd.  He spent about a month in the hospital and a month in a rehab hosp…

Started by Vic58 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

12 on Thursday
Reply by Vic58

10 months in

Hi everyone, Well a bit about me, I'm married with 2 pre-school children and live in Brisbane, Australia. The toughest thing about Guillain…

Started by Nojabold in General

8 on Wednesday
Reply by Jessica

Are naturopaths helpful?

Looking for a way to deal with numbness now above the elbows to fingertips, knees to toes, 4 months into GBS for the second go round. Gabap…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

6 on Wednesday
Reply by Gayleen

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Thank you all for your comments!

Posted by Sandishus on September 17, 2014 at 4:26pm 0 Comments

I don't have much time to post right now but, I want to say thank you so much. I am encouraged by everyone here. And, I find after reading other blogs the crazy things I think are not so crazy :) . I have gained about 2 pounds a month since I…

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This is my story and I'm sticking to it!

Posted by Sandishus on September 8, 2014 at 1:14am 4 Comments

I am starting this blog to help me remember how bad I was and how good I am now. After reading posts for a year I realize how lucky I am, it could have been so much worse. I am so thankful.

First, let me say that I have smoked for over 40…

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