Forum Discussions (231)

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hello, new here

Hi, I got GBS back in october, it has been a confusing and very painful recover.  I would really like to talk to some other members in this…

Started by Timity in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Miller Fisher Syndrome: Fuzzy/Foggy Head & Emotional Outbursts

My name is Max, I was diagnosed with Miller Fisher Syndrome on 4th October 2013. I was in hospital for only a few weeks (one week in intens…

Started by Maxwell690 in GeneralLatest Reply

GBS Survivor and fighter.

I'm new here and my wife told me about this site. Never knew about it til last night.'  I got diagnosed with GBS on Dec 22 2013. I'm still…

Started by Patrick in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Discussions Replies Latest Activity

Hi - we are new to this support group

My son (3) was diagnosed with Guillain-Barre a little over three weeks ago.  It has been a crazy time and we are searching for more informa…

Started by RollerCoasterMom in General

1 57 minutes ago
Reply by Nutty

GBS and Shaky Hands

Hi I am a new member and was delighted to received such a warm welcome - Thank you! I am GBS survivor and almost a year down the line I am…

Started by Nutty in General

4 1 hour ago
Reply by Nutty

can she get better ?

my mom was just diagnosed with acute Gillian barre. I've been reading so much but nothing has answered my question. is she automatically do…

Started by brooke in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

7 7 hours ago
Reply by Kathy Cooper

Recovery for Guillian Barre' Syndrome

Hi, everyone! I am here on behalf of my brother in law Jim, who recently developed a fast onset of GBS. This is day 29, he is still in a IC…

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

12 14 hours ago
Reply by Lisa Cremeans

My sisters story

My sister, Maria (33) had a mild chest infection then after afew weeks had tingling and numbness in her hands and tongue. She went to sleep…

Started by Anna banana in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

13 yesterday
Reply by Nebretta

Moderator

Sean Vikta & Blue Redefined Patient Organization Sponsors Ben's Friends

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a no…

Started by Scott Orn in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

0 yesterday

Signs of Recovery

My 25 y/o brother was diagnosed with GBS about a month ago. He was given IV treatment at the hospital and remained under doctors supervisio…

Started by Naveed in General

0 yesterday

IVIG, PAIN,... HELP

My doc sounded like after the first 5 outpatient IVIG round (5 in 5 days), since I continued to show more weakness (which showed true with…

Started by Kathy Cooper in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

1 on Sunday
Reply by Timity

did anybody get the "zaps"?

that's the question

Started by Timity in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

7 on Sunday
Reply by Kathy Cooper

new to group but not GBS

I started falling in september 2012 then paralysis oct 3 2012. I spent 14 months in a nursing home (4.5 learning to walk again) the rest bu…

Started by mistylynn81 in General

7 on Sunday
Reply by dancermom

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June 2014 Community Newsletter

Posted by Ben Munoz on June 30, 2014 at 11:30am 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
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my daughter Danielle

Posted by Evelyn Thomas on June 7, 2014 at 2:11am 1 Comment

While in the hospital my daughter appeared dead and code blue was called. I was crying and praying they put her two babies and me out.only to find she was just frozen but could hear. Is this normal?

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