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Ben's Friends Member Survey

We are working with a non profit consulting firm called Bridgespan that helped us put this survey together to help us quantify the benefits…

Started by Scott Orn in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

hallucinations and dreams

Thank you everyone for your support.  Went and visit my sister today (as I do every day).....she has been in ICU for 3 weeks now with GBS..…

Started by mozart in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

New Member Posting

Hello Everybody, I found this forum on March 4 and it has taken me a couple weeks for first posting. First for my GBS story and afterwards…

Started by Ken in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Discussions Replies Latest Activity

food and GBS

http://m.youtube.com/watch?v=KLjgBLwH3Wc I heard that what you eat is very important for those with autoimmune disease. I like and I believ…

Started by doda in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

2 16 hours ago
Reply by ramgbs

Mild GBS

I am not paralyzed and know I am very lucky. I never knew there is mild GBS. Yet, it is very hard to get activities of daily living done du…

Started by Rosemarie kaupp in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 16 hours ago
Reply by Rosemarie kaupp

Diagnosed with Mild Case of Gullian Barre Syndrome Many Questions

I was diagnosed with Gullian Barre Syndrome on July 16th by the nuerologist at the hospital at was admitted in.  I stayed there a week whil…

Started by missa in General

14 on Tuesday
Reply by Rosemarie kaupp

pain

My daughter, Jamie, has been experiencing severe pain in fingers and toes. It has been about 8 days since she completed the IMG treatments.…

Started by jamie77 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 on Sunday
Reply by QweensGambit

Our Journey through Guillian-Barre ... Please Watch...... NEVER GIVE UP HOPE!

http://youtu.be/TvfoQ8viiqE We're here to say Never give up hope...even when things look grim and ther's no end in sight or the doctors say…

Started by FTK in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 on Friday
Reply by ramgbs

just want to know

I wanted to ask all the members, how long does the tiredness last. Will the pain go away in time? My son has GBS. His getting better. Has h…

Started by Charlene Ako in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

8 Apr 10
Reply by EricaK

Moderator

Success Stories

Sometimes it's hard to find  Success Stories, Positive Discussions or groups that are uplifting on the site. We want to make it easier for…

Started by Scott Orn in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

21 Apr 7
Reply by FTK

hallucinations and dreams

Thank you everyone for your support.  Went and visit my sister today (as I do every day).....she has been in ICU for 3 weeks now with GBS..…

Started by mozart in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

20 Apr 3
Reply by LanceB

Kids and GBS?

I was working full time at a nursing home that required I get a flu shot.  I had already had one, but I couldn't find my records.  I asked…

Started by laetari in General

9 Mar 26
Reply by lexdd

Feeling "normal"

I have not felt like myself pre-GBS since before I was diagnpsed in 2008. Does anyone feel "normal" post GBS?

Started by Melissa Michael in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

6 Mar 26
Reply by Joanne721

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Community Newsletter

Posted by Ben Munoz on March 3, 2014 at 9:00pm 0 Comments

Dear GBS Family and Friends,

We're very happy to announce that we were just approved as an official nonprofit by the IRS!!
This means that we are eligible for corporate and…
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Part 2 The situation

Posted by Ape on February 28, 2014 at 9:28am 0 Comments

Jim spent nearly four years trapped inside himself. To the casual observer he appeared to be in a coma like state, but he later explained that he had heard and was aware of what was going on around him. He told me about my visit to the home where…

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