Forum Discussions (233)

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Do vitamins help

Do vitamins help at all to speed recovery of the myelin regrowth and can they help Reduce the numbness/ pins and needles in your arms to fi…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Will I ever regain my full body functions

I was diagnosed with GBS on Nov 2011 at 30 years old I am 33 and still need assistance to walk my left side of my body still has a lot of w…

Started by Melissa in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Latest Reply

Signs of Recovery

My 25 y/o brother was diagnosed with GBS about a month ago. He was given IV treatment at the hospital and remained under doctors supervisio…

Started by Naveed in GeneralLatest Reply

Discussions Replies Latest Activity

IVIG, PAIN,... HELP

My doc sounded like after the first 5 outpatient IVIG round (5 in 5 days), since I continued to show more weakness (which showed true with…

Started by Kathy Cooper in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 1 hour ago
Reply by Kathy Cooper

Will I ever regain my full body functions

I was diagnosed with GBS on Nov 2011 at 30 years old I am 33 and still need assistance to walk my left side of my body still has a lot of w…

Started by Melissa in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

4 1 hour ago
Reply by Kathy Cooper

Signs of Recovery

My 25 y/o brother was diagnosed with GBS about a month ago. He was given IV treatment at the hospital and remained under doctors supervisio…

Started by Naveed in General

5 2 hours ago
Reply by Kathy Cooper

Recovery for Guillian Barre' Syndrome

Hi, everyone! I am here on behalf of my brother in law Jim, who recently developed a fast onset of GBS. This is day 29, he is still in a IC…

Started by Ms.AmuseBouche'Photog in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

21 3 hours ago
Reply by Ms.AmuseBouche'Photog

Do vitamins help

Do vitamins help at all to speed recovery of the myelin regrowth and can they help Reduce the numbness/ pins and needles in your arms to fi…

Started by Gayleen in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

3 7 hours ago
Reply by Gayleen

can she get better ?

my mom was just diagnosed with acute Gillian barre. I've been reading so much but nothing has answered my question. is she automatically do…

Started by brooke in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

10 15 hours ago
Reply by LanceB

Hi - we are new to this support group

My son (3) was diagnosed with Guillain-Barre a little over three weeks ago.  It has been a crazy time and we are searching for more informa…

Started by RollerCoasterMom in General

13 yesterday
Reply by LanceB

GBS and Shaky Hands

Hi I am a new member and was delighted to received such a warm welcome - Thank you! I am GBS survivor and almost a year down the line I am…

Started by Nutty in General

9 on Friday
Reply by Nutty

My sisters story

My sister, Maria (33) had a mild chest infection then after afew weeks had tingling and numbness in her hands and tongue. She went to sleep…

Started by Anna banana in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

13 Jul 22
Reply by Nebretta

Moderator

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friend

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a no…

Started by Scott Orn in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

0 Jul 22

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June 2014 Community Newsletter

Posted by Ben Munoz on June 30, 2014 at 11:30am 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
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my daughter Danielle

Posted by Evelyn Thomas on June 7, 2014 at 2:11am 1 Comment

While in the hospital my daughter appeared dead and code blue was called. I was crying and praying they put her two babies and me out.only to find she was just frozen but could hear. Is this normal?

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