Members: 4
Latest Activity: 8 hours ago

I would like to dedicate this first song to all  of you who suffer from CBS~ It is my way of saying how humbled I feel after reading about how quickly it can hit and how devastating this disorder can be, and how honored I feel to be a part of your recovery---your discovery

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Comment by Roddy 8 hours ago

Hi James,  How long ago did you have GBS?

Comment by JamesP yesterday

I play piano and bass - a lot, but cant even get a single note out of either now.

I should be doing at least one gig this weekend, but no chance...

anyway, i'm convinceed that I can and w2ill play agai9n.  I intend to try and combine physio with music, and with some of the old basic physical techniques used to train classical pianists - things designed to allow free movement in arms, shoulders, wrists etc.

stretch goal is ti use this time to rebuild my technique from scratch... because thats where ill have to begin.  anyone else tried this ki8nd of appproach?

Comment by Roddy on October 9, 2013 at 7:19am

Hi dj,

Have you had Guillan Barre? I had the Miller Fisher variant of GBS. I play the guitar, in June this year. My hands have been slowed down by this. Have you experienced anything similar? If so, how long did it take you to recover, or how far have you recovered? Thanks, Roddy

Comment by dj on February 22, 2013 at 1:50am

I'm a mandolin player. I primarily play bluegrass and gospel music.


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Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 10:04pm 1 Comment

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


1 year later

Posted by Deborah Yount on August 21, 2014 at 3:17am 9 Comments

I was diagnosed with GBS a year ago (Aug. 10, 2013). I was wondering if there was anyone else out there like me. I will be 50 years old in a few months and when I was diagnosed with GBS I was also going through menopause. I have made great progress… Continue

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