survivor
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Moderator
Scott Orn left a comment for survivor
"Great name Survivor! huge welcome to the group!"
Oct 20, 2013

Moderator
mdolich left a comment for survivor
"Welcome to our family Survivor. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Check your inbox, I sent you some…"
Oct 19, 2013
survivor is now a member of Guillain-Barre Support - Online Support Group
Oct 19, 2013

Profile Information

Are you a patient, relative, friend, caretaker or medical professional?
Patient
When were you (or the patient) diagnosed?
November 25, 2006
What medications and/or treatment have you tried?
gabapentin, hydrocodone
How has Guillain Barre affected your quality of life? Your ability to work?
yes it did. I am now able to hold down a part time job. I was paralyzed due to the pain. It's been a very long and hard, painful road
Please share your story with the community...(even a few words helps us know you are not a spammer. :))
I was 34 in 2006 going through a divorce and a single mother. I had just come out of a long and very rough marriage. My husband at the time was an addict and made my life very difficult. I finally decided to get out of the marriage and get my life back on track. I left him moved home and started over. I thought a new and fresh start. Was gonna start my life over. A new and improved me, That's exactly what I got. A life where I felt as if I was in the pitts of hell. I burned so bad the shooting pains I felst as if someone was stabbing me over and over again. I felt as if I was being burned and electrocuted. I couldn't hold anything down. I felt as if I was starving to death. I wanted to die I have never in my life felt so much pain all at once. There is so much to tell in the in between. But I am a survivor I took one day at a time after the lord saved me time and time again. Now I walk. I was in a wheelchair a year and a walker an additional year. I am still weak and still fill pain but I am a survivor and get better and better everyday. Now I am married to a wonderful man hat helps me everyday.
How did you hear about us? (This information tells us how to best find new patients to help!)
Other
Would you like to recommend a surgeon, therapist, or a hospital?
Valenzuela was a wonderful doctor.
Why did you decide to join (multiple answers okay)?
Cure: I want to help find a cure.
Do you want to OPT-IN of the Ben's Friends monthly newsletter (http://bensfriends.org/welcome/newsletters)?
Yes - please send me the monthly Ben's Friends Patient Communities newsletter.
What are you passionate about?
awareness people need to be aware of different diseases or illnesses

Comment Wall (2 comments)

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Join Guillain-Barre Support - Online Support Group

At 12:19am on October 20, 2013,
Moderator
Scott Orn
said…

Great name Survivor! huge welcome to the group!

At 11:40pm on October 19, 2013,
Moderator
mdolich
said…

Welcome to our family Survivor. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Check your inbox, I sent you some info.

Good Luck, ""Stay Strong and keep a Positive Attitude""

 
 
 

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Blog Posts

Thank you all for your comments!

Posted by Sandishus on September 17, 2014 at 4:26pm 0 Comments

I don't have much time to post right now but, I want to say thank you so much. I am encouraged by everyone here. And, I find after reading other blogs the crazy things I think are not so crazy :) . I have gained about 2 pounds a month since I…

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This is my story and I'm sticking to it!

Posted by Sandishus on September 8, 2014 at 1:14am 4 Comments

I am starting this blog to help me remember how bad I was and how good I am now. After reading posts for a year I realize how lucky I am, it could have been so much worse. I am so thankful.

First, let me say that I have smoked for over 40…

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