"Welcome to our family Survivor. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Check your inbox, I sent you some…"
Oct 19, 2013
survivor is now a member of Guillain-Barre Support - Online Support Group
Are you a patient, relative, friend, caretaker or medical professional?
When were you (or the patient) diagnosed?
November 25, 2006
What medications and/or treatment have you tried?
How has Guillain Barre affected your quality of life? Your ability to work?
yes it did. I am now able to hold down a part time job. I was paralyzed due to the pain. It's been a very long and hard, painful road
Please share your story with the community...(even a few words helps us know you are not a spammer. :))
I was 34 in 2006 going through a divorce and a single mother. I had just come out of a long and very rough marriage. My husband at the time was an addict and made my life very difficult. I finally decided to get out of the marriage and get my life back on track. I left him moved home and started over. I thought a new and fresh start. Was gonna start my life over. A new and improved me, That's exactly what I got. A life where I felt as if I was in the pitts of hell. I burned so bad the shooting pains I felst as if someone was stabbing me over and over again. I felt as if I was being burned and electrocuted. I couldn't hold anything down. I felt as if I was starving to death. I wanted to die I have never in my life felt so much pain all at once. There is so much to tell in the in between. But I am a survivor I took one day at a time after the lord saved me time and time again. Now I walk. I was in a wheelchair a year and a walker an additional year. I am still weak and still fill pain but I am a survivor and get better and better everyday. Now I am married to a wonderful man hat helps me everyday.
How did you hear about us? (This information tells us how to best find new patients to help!)
Would you like to recommend a surgeon, therapist, or a hospital?
Valenzuela was a wonderful doctor.
Why did you decide to join (multiple answers okay)?
Cure: I want to help find a cure.
Do you want to OPT-IN of the Ben's Friends monthly newsletter (http://bensfriends.org/welcome/newsletters)?
Yes - please send me the monthly Ben's Friends Patient Communities newsletter.
What are you passionate about?
awareness people need to be aware of different diseases or illnesses
Comment Wall (2 comments)
You need to be a member of Guillain-Barre Support - Online Support Group to add comments!
Welcome to our family Survivor. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Check your inbox, I sent you some info.
Good Luck, ""Stay Strong and keep a Positive Attitude""
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Welcome to Guillain-Barre Support - Online Support Group
I am from Turkey, the country where the people never heard about GBS before because it happens to 1 person in 1 million only in this region. I was diagnosed in November in 2013 and stayed in hospital for 2,5 months. After 3… Continue