I dont have a good support network and thiz gbs experienc has taken more than a lot from me. Noome ever seems to understand. It and i dont want to give into it, just really down and i dont know how to talk to anyone about it.

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Comment by Timity on August 4, 2014 at 2:43pm
feel for you guys but my experience was different
Comment by flat rock bob on August 2, 2014 at 11:59pm

I was hit with GBS at the age of 72 - I am now 75 - still kicking. My wife told me the daughter of a friend of hers was just diagnosed -- she is 9 years old. Let us all pray for this little girl. I can handle the numb feet and hands - I can handle walking with a cane - I can handle the occasional depression -- but I am nearing the end of my journey. This little girl is just beginning her life - I pray for her complete recovery

Comment by artsharp on August 2, 2014 at 3:07pm
Keep talking to us. We know your pain. You can make it through, with minimal personal support, for you WILL improve. Yes, it is so very difficult! I am so sorry you must endure this. Yes, GBS is sort of a game of endurance. Always know that we with GBS are so very fortunate as compared to those with conditions that limited to healing.
Exercise greatly helps. I cycle, also. The bicycling holds deep meaning and great rewards (including fresh air, sunshine, heart/lung/muscle/mind exercise, and freedom! :-)
Distraction for pain. Occupying your body and thoughts. Giving to others, even if only in simple words, gives back to you. Sending thoughts of strength and comfort to you.
Comment by Bergerhoo on August 2, 2014 at 2:35pm
I also like everything that LanceB wrote. I also took comfort from this http://www.butyoudontlooksick.com/wpress/articles/written-by-christ...
As has many others here. Just live each day that comes, and let tomorrow take care of itself.
Comment by Timity on August 2, 2014 at 12:58pm
Its ok, ii just know i went ghrough something different.
Comment by Gayleen on August 2, 2014 at 12:21pm
Ps sorry about the typos,one finger stuff :)
Comment by Gayleen on August 2, 2014 at 12:19pm
It is rough Timity and fin dig that light at the end of the tunnel is hard work, big hugs. Losing independence knocks the stuffing right out of you, leading to lots of anger. I find it helpful to write these feelings down, I use my ipad or the computer because I can one finger type as I still haven't regained writing skills with the numbness. So much of feeling down is really anger turned inwards. It is okay to rant and rave and release those feelings, it will leave you feeling drained but more still peace and able to deal with things minute by minute, one steps a tie. I often wish we could take our heads off every night, if we weren't thinking this way we wouldn't be feeling this way. Hang in there, life will come back, not maybe as you once knew it but better than that because you will be stronger, you will no longer put up with things that once got you down.
Be kind to yourself, you are so worth it.
Comment by Nebretta on August 2, 2014 at 12:15pm

Hi Timity - I would be interested in your story - and why you feel "not really sure how I'm alive"

Nebretta

Comment by Timity on August 2, 2014 at 12:11pm
Thank you, my experience is still pretty different though, not discounting. anybody else. I just know, its a pretty insane story, not really sure how im alive.
Comment by daley54 on August 2, 2014 at 12:02pm
I understand everything that you are going through with this GBS. I also have quite a few peaks and valleys in dealing with the symptoms. I was independent before this happened and now I can no longer work or support myself. Thank God that I have a wonderful husband but it does not negate the fact that I am now dependent on him. I am working hard to regain my independence through exercise etc. I just think of two things...never give up and this to shall pass. It is normal to feel a little down but please just do not stay there.

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